WEKO3
アイテム
日本におけるHTLV-1関連脊髄症／熱帯性痙性対麻痺のセルフマネジメント : 質的研究
http://hdl.handle.net/10232/0002002757
http://hdl.handle.net/10232/00020027573b6d46df-4bbf-4e8f-86d6-e37f4798f248
.png)
| アイテムタイプ | 学位論文 / Thesis or Dissertation(1) | |||||||||
|---|---|---|---|---|---|---|---|---|---|---|
| 公開日 | 2026-07-24 | |||||||||
| タイトル | ||||||||||
| タイトル | Self-management of HTLV-1-associated myelopathy/tropical spastic paraparesis in Japan: A qualitative study | |||||||||
| タイトル言語 | en | |||||||||
| タイトル | ||||||||||
| タイトル | 日本におけるHTLV-1関連脊髄症／熱帯性痙性対麻痺のセルフマネジメント : 質的研究 | |||||||||
| タイトル言語 | ja | |||||||||
| 著者 |
山口, さおり
× 山口, さおり
|
|||||||||
| 言語 | ||||||||||
| 言語 | eng | |||||||||
| 資源タイプ | ||||||||||
| 資源タイプ識別子 | http://purl.org/coar/resource_type/c_db06 | |||||||||
| 資源タイプ | doctoral thesis | |||||||||
| アクセス権 | ||||||||||
| アクセス権 | open access | |||||||||
| アクセス権URI | http://purl.org/coar/access_right/c_abf2 | |||||||||
| 要約 | ||||||||||
| 内容記述タイプ | Other | |||||||||
| 内容記述 | Background HTLV-1 associated myelopathy/tropical spastic paraparesis (HAM/TSP) is a spastic spinal cord-related paralysis that is caused by a human T-lymphotropic virus type 1 infection. Common symptoms of HAM/TSP include gait disorder, bladder disturbance, constipation, and sensory symptoms. Because no curative treatment exists, individuals with HAM/TSP have to self-manage their chronic condition. Although patients with HAM/TSP have unique self-management strategies owing to their complex backgrounds, limited information is available on how they self-manage their chronic conditions. This study aimed to explore the self-management strategies of patients with HAM/TSP in Japan. Methods Using semi-structured interviews and an open-ended questionnaire, data were collected from seven participants with HAM/TSP. Interviews were transcribed verbatim. Data analysis was conducted using a qualitative content analysis method to identify categories that describe the self-management strategies of people with HAM/TSP. Findings Six core categories of self-management strategies of people with HAM/TSP were identified: “Attempting to maintain body functions”, “Acquiring new ways to complement body functions”, “Engaging to maintain an independent daily life”, “Ensuring a specialized treatment environment for HAM/TSP”, “Taking control of HAM/TSP”, and “Moving forward as people with HAM/TSP.”. Conclusions The self-management strategies of people with HAM/TSP are affected by three characteristics of HAM/TSP: the lack of an established curative treatment, the low social awareness of the disease, and its infectious nature. This study highlights the need for personalized educational strategies and accessible support for the development of self-management skills. |
|||||||||
| 内容記述言語 | en | |||||||||
| 要約 | ||||||||||
| 内容記述タイプ | Other | |||||||||
| 内容記述 | Saori Yamaguchi, Rika Yatsushiro (2026) Self-management of HTLV-1-associated myelopathy/tropical spastic paraparesis in Japan: A qualitative study. PLOS Neglected Tropical Diseases 20(3): e0014055. https://doi.org/10.1371/journal.pntd.0014055 |
|||||||||
| 内容記述言語 | en | |||||||||
| 作成日 | ||||||||||
| 日付 | 2026-06-15 | |||||||||
| 日付タイプ | Collected | |||||||||
| 権利 | ||||||||||
| 権利情報Resource | https://creativecommons.org/licenses/by/4.0/ | |||||||||
| 権利情報 | © 2026 Yamaguchi, Yatsushiro. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. | |||||||||
| 権利情報の言語 | en | |||||||||
| 出版タイプ | ||||||||||
| 出版タイプ | VoR | |||||||||
| 出版タイプResource | http://purl.org/coar/version/c_970fb48d4fbd8a85 | |||||||||
| ファイル（説明） | ||||||||||
| 内容記述 | 博士論文全文, 博士論文要旨, 最終試験結果の要旨, 論文審査の要旨 | |||||||||
| 公開者・出版者 | ||||||||||
| 出版者 | PLOS | |||||||||
| 出版者言語 | en | |||||||||
| 公開者・出版者 | ||||||||||
| 出版者 | 鹿児島大学 | |||||||||
| 出版者言語 | ja | |||||||||
| 備考 | ||||||||||
| 備考言語 | ja | |||||||||
| 備考 | 【指導教員：八代利香】 | |||||||||
| date.appl | ||||||||||
| date.appl | 【学位申請日】2026-03-25 | |||||||||
| 学位名 | ||||||||||
| 学位名 | 博士(保健学) | |||||||||
| 学位名の言語 | ja | |||||||||
| 学位名 | ||||||||||
| 学位名 | Doctor of Philosophy in Health Science | |||||||||
| 学位名の言語 | en | |||||||||
| 学位授与機関名 | ||||||||||
| 学位授与機関識別子Scheme | kakenhi | |||||||||
| 学位授与機関識別子 | 17701 | |||||||||
| 学位授与機関名 | 鹿児島大学 | |||||||||
| 学位授与機関名の言語 | ja | |||||||||
| 学位授与年月日 | ||||||||||
| 学位授与年月日 | 2026-06-30 | |||||||||
| 学位授与番号 | ||||||||||
| 学位授与番号 | 乙保論第8号 | |||||||||
